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dc.contributor.authorLee, Siang Ing
dc.contributor.authorHanley, Stephanie
dc.contributor.authorVowles, Zoe
dc.contributor.authorPlachcinski, Rachel
dc.contributor.authorAzcoaga-Lorenzo, Amaya
dc.contributor.authorTaylor, Beck
dc.contributor.authorNelson-Piercy, Catherine
dc.contributor.authorMcCowan, Colin
dc.contributor.authorO’Reilly, Dermot
dc.contributor.authorHope, Holly
dc.contributor.authorAbel, Kathryn M
dc.contributor.authorEastwood, Kelly-Ann
dc.contributor.authorLocock, Louise
dc.contributor.authorSingh, Megha
dc.contributor.authorMoss, Ngawai
dc.contributor.authorBrophy, Sinead
dc.contributor.authorNirantharakumar, Krishnarajah
dc.contributor.authorThangaratinam, Shakila
dc.contributor.authorBlack, Mairead
dc.identifier.citationLee , S I , Hanley , S , Vowles , Z , Plachcinski , R , Azcoaga-Lorenzo , A , Taylor , B , Nelson-Piercy , C , McCowan , C , O’Reilly , D , Hope , H , Abel , K M , Eastwood , K-A , Locock , L , Singh , M , Moss , N , Brophy , S , Nirantharakumar , K , Thangaratinam , S & Black , M 2023 , ' Key outcomes for reporting in studies of pregnant women with multiple long-term conditions and their children : a qualitative study ' , BMJ Open , vol. 23 , 551 .
dc.identifier.otherORCID: /0000-0002-9466-833X/work/139964710
dc.identifier.otherORCID: /0000-0003-3307-878X/work/139965452
dc.descriptionFunding: This work was funded by the Strategic Priority Fund “Tackling multimorbidity at scale” programme (grant number MR/W014432/1) delivered by the Medical Research Council and the National Institute for Health Research in partnership with the Economic and Social Research Council and in collaboration with the Engineering and Physical Sciences Research Council. BT was funded by the National Institute for Health Research (NIHR) West Midlands Applied Research Collaboration.en
dc.description.abstractBackground Maternal multiple long-term conditions are associated with adverse outcomes for mother and child. We conducted a qualitative study to inform a core outcome set for studies of pregnant women with multiple long-term conditions. Methods Women with two or more pre-existing long-term physical or mental health conditions, who had been pregnant in the last five years or planning a pregnancy, their partners and health care professionals were eligible. Recruitment was through social media, patients and health care professionals’ organisations and personal contacts. Participants who contacted the study team were purposively sampled for maximum variation. Three virtual focus groups were conducted from December 2021 to March 2022 in the United Kingdom: (i) health care professionals (n=8), (ii) women with multiple long-term conditions (n=6), and (iii) women with multiple long-term conditions (n=6) and partners (n=2). There was representation from women with 20 different physical health conditions and four mental health conditions; health care professionals from obstetrics, obstetric/maternal medicine, midwifery, neonatology, perinatal psychiatry, and general practice. Participants were asked what outcomes should be reported in all studies of pregnant women with multiple long-term conditions. Inductive thematic analysis was conducted. Outcomes identified in the focus groups were mapped to those identified in a systematic literature search in the core outcome set development. Results The focus groups identified 63 outcomes, including maternal (n=43), children’s (n=16) and health care utilisation (n=4) outcomes. Twenty-eight outcomes were new when mapped to the systematic literature search. Outcomes considered important were generally similar across stakeholder groups. Women emphasised outcomes related to care processes, such as information sharing when transitioning between health care teams and stages of pregnancy (continuity of care). Both women and partners wanted to be involved in care decisions and to feel informed of the risks to the pregnancy and baby. Health care professionals additionally prioritised non-clinical outcomes, including quality of life and financial implications for the women; and longer-term outcomes, such as children’s developmental outcomes. Conclusions The findings will inform the design of a core outcome set. Participants’ experiences provided useful insights of how maternity care for pregnant women with multiple long-term conditions can be improved.
dc.relation.ispartofBMJ Openen
dc.subjectMultiple chronic conditionsen
dc.subjectMultiple long-term conditionsen
dc.subjectCore outcome seten
dc.subjectRG Gynecology and obstetricsen
dc.subjectSDG 3 - Good Health and Well-beingen
dc.titleKey outcomes for reporting in studies of pregnant women with multiple long-term conditions and their children : a qualitative studyen
dc.typeJournal articleen
dc.contributor.sponsorMedical Research Councilen
dc.contributor.institutionUniversity of St Andrews. School of Medicineen
dc.contributor.institutionUniversity of St Andrews. Sir James Mackenzie Institute for Early Diagnosisen
dc.contributor.institutionUniversity of St Andrews. Population and Behavioural Science Divisionen
dc.description.statusPeer revieweden

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