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dc.contributor.authorAnderson, Niall C.
dc.contributor.authorZhou, Yuefang
dc.contributor.authorHumphris, Gerry
dc.date.accessioned2021-11-04T17:30:07Z
dc.date.available2021-11-04T17:30:07Z
dc.date.issued2021-06-03
dc.identifier273672162
dc.identifier6949b46f-4cf9-473f-9c01-6e19dc06617b
dc.identifier85107126962
dc.identifier000661924800001
dc.identifier.citationAnderson , N C , Zhou , Y & Humphris , G 2021 , ' How are emotional distress and reassurance expressed in medical consultations for people with long-term conditions who were unable to receive curative treatment? a pilot observational study of Huntington's disease and prostate cancer ' , Pilot and Feasibility Studies , vol. 7 , 119 . https://doi.org/10.1186/s40814-021-00833-zen
dc.identifier.issn2055-5784
dc.identifier.otherRIS: urn:2C1199C1E80CCD8C459200C5EF6D5DB8
dc.identifier.otherRIS: urn:2C1199C1E80CCD8C459200C5EF6D5DB8
dc.identifier.otherRIS: Anderson2021
dc.identifier.otherORCID: /0000-0002-4601-8834/work/103137493
dc.identifier.urihttps://hdl.handle.net/10023/24261
dc.description.abstractObjective It is unclear whether how people with long-term conditions express distress, and how clinicians respond, influences perceptions of consultation outcomes. The pilot study examined emotional distress and reassurance in consultations with people whose long-term conditions (at the time of consultations) were treated using active surveillance or symptom management (as no curative treatment was suitable). Methods An observational pilot study was conducted involving consultations between people with long-term conditions and their respective clinician. Consultations between three clinicians (two Huntington’s Disease; one Prostate Cancer) and 22 people with long-term conditions (11 Huntington’s Disease; 11 Prostate Cancer) were audio-recorded. Participants also completed an expanded Consultation and Relational Empathy (CARE) Measure. Two researchers coded sessions using Verona Coding Definitions of Emotional Sequences (VR-CoDES/VR-CoDES-P). Code frequencies were calculated, t tests performed between conditions, and Pearson’s correlations performed for associations between CARE responses and clinician utterances. Results People with long-term conditions expressed emotional distress on average 4.45 times per session, averaging 1.09 Concern and 3.36 Cue utterances. Clinicians responded with more explicit (2.59) and space-providing (3.36), than non-explicit (1.86) and space-reducing (1.09), responses per session. Clinicians expressed spontaneous reassurance on average 5.18 times per session, averaging 3.77 Cognitive and 1.5 Affective reassurance utterances. Huntington’s Disease consultations featured significantly more 'Cues', 'Concerns' and 'Overall' 'Emotional Distress', and 'Cognitive' and 'Overall' ‘Reassurance'. Conclusion Emotional distress was expressed more using hints than explicit concern utterances. Clinicians predominantly explicitly explored distress rather than providing information/advice and provided advice using spontaneous cognitive reassurance. People with Huntington’s Disease expressed more concerns and received more reassurance, indicating different needs between conditions. Future research is required to explore emotional distress and reassurance in a larger sample of participants and long-term condition types, and how the practical implications of these findings may be used to enhance outcomes of consultations.
dc.format.extent11
dc.format.extent625236
dc.language.isoeng
dc.relation.ispartofPilot and Feasibility Studiesen
dc.subjectAffective reassuranceen
dc.subjectCognitive reassuranceen
dc.subjectEmotional distressen
dc.subjectHuntington's diseaseen
dc.subjectProstate canceren
dc.subjectRA Public aspects of medicineen
dc.subjectRC0254 Neoplasms. Tumors. Oncology (including Cancer)en
dc.subjectDASen
dc.subjectSDG 3 - Good Health and Well-beingen
dc.subjectMCCen
dc.subject.lccRAen
dc.subject.lccRC0254en
dc.titleHow are emotional distress and reassurance expressed in medical consultations for people with long-term conditions who were unable to receive curative treatment? : a pilot observational study of Huntington's disease and prostate canceren
dc.typeJournal articleen
dc.contributor.institutionUniversity of St Andrews. School of Medicineen
dc.contributor.institutionUniversity of St Andrews. Sir James Mackenzie Institute for Early Diagnosisen
dc.contributor.institutionUniversity of St Andrews. Population and Behavioural Science Divisionen
dc.contributor.institutionUniversity of St Andrews. WHO Collaborating Centre for International Child & Adolescent Health Policyen
dc.contributor.institutionUniversity of St Andrews. Health Psychologyen
dc.contributor.institutionUniversity of St Andrews. St Andrews Sustainability Instituteen
dc.identifier.doi10.1186/s40814-021-00833-z
dc.description.statusPeer revieweden


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