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dc.contributor.authorRogers, Simon
dc.contributor.authorAllmark, Christine
dc.contributor.authorBekiroglu, Fazilet
dc.contributor.authorTudor Edwards, Rhiannon
dc.contributor.authorFabbroni, Gillon
dc.contributor.authorFlavel, Robert
dc.contributor.authorHighet, Victoria
dc.contributor.authorHo, Michael W. S.
dc.contributor.authorHumphris, Gerald Michael
dc.contributor.authorJones, Terry M.
dc.contributor.authorKhattak, Owais
dc.contributor.authorLancaster, Jeffrey
dc.contributor.authorLoh, Christopher
dc.contributor.authorLowe, Derek
dc.contributor.authorLowies, Cher
dc.contributor.authorMacareavy, Dominic
dc.contributor.authorMoor, James
dc.contributor.authorOng, T. K.
dc.contributor.authorPrasai, A.
dc.contributor.authorRoland, Nicholas
dc.contributor.authorSemple, Cherith
dc.contributor.authorHaf Spencer, Llinos
dc.contributor.authorTandon, Sank
dc.contributor.authorThomas, Steven J.
dc.contributor.authorSchache, Andrew
dc.contributor.authorShaw, Richard J.
dc.contributor.authorKanatas, Anastasios
dc.date.accessioned2020-07-20T16:30:02Z
dc.date.available2020-07-20T16:30:02Z
dc.date.issued2020-06-01
dc.identifier267963896
dc.identifiercbafddef-ade5-4a30-a923-1c99be28cbab
dc.identifier000537396000004
dc.identifier85085873010
dc.identifier.citationRogers , S , Allmark , C , Bekiroglu , F , Tudor Edwards , R , Fabbroni , G , Flavel , R , Highet , V , Ho , M W S , Humphris , G M , Jones , T M , Khattak , O , Lancaster , J , Loh , C , Lowe , D , Lowies , C , Macareavy , D , Moor , J , Ong , T K , Prasai , A , Roland , N , Semple , C , Haf Spencer , L , Tandon , S , Thomas , S J , Schache , A , Shaw , R J & Kanatas , A 2020 , ' Improving quality of life through the routine use of the patient concerns inventory for head and neck cancer patients : baseline results in a cluster preference randomised controlled trial ' , British Journal of Oral and Maxillofacial Surgery , vol. First Online . https://doi.org/10.1007/s00405-020-06077-6en
dc.identifier.issn0266-4356
dc.identifier.otherORCID: /0000-0002-4601-8834/work/77893673
dc.identifier.urihttps://hdl.handle.net/10023/20296
dc.descriptionFunding: RfPB on behalf of the NIHR (PB-PG-0215-36047). This paper presents independent research funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (Grant Reference Number PB-PG-0215-36047).en
dc.description.abstractPurpose The main aim of this paper is to present baseline demographic and clinical characteristics and HRQOL in the two groups of the Patient Concerns Inventory (PCI) trial. The baseline PCI data will also be described. Methods This is a pragmatic cluster preference randomised control trial with 15 consultant clusters from two sites either ‘using' (n = 8) or ‘not using’ (n = 7) the PCI at a clinic for all of their trial patients. The PCI is a 56-item prompt list that helps patients raise concerns that otherwise might be missed. Eligibility was head and neck cancer patients treated with curative intent (all sites, stage of disease, treatments). Results From 511 patients first identified as eligible when screening for the multi-disciplinary tumour board meetings, 288 attended a first routine outpatient baseline study clinic after completion of their treatment, median (IQR) of 103 (71–162) days. At baseline, the two trial groups were similar in demographic and clinical characteristics as well as in HRQOL measures apart from differences in tumour location, tumour staging and mode of treatment. These exceptions were cluster (consultant) related to Maxillofacial and ENT consultants seeing different types of cases. Consultation times were similar, with PCI group times taking about 1 min longer on average (95% CL for the difference between means was from − 0.7 to + 2.2 min). Conclusion Using the PCI in routine post-treatment head and neck cancer clinics do not elongate consultations. Recruitment has finished but 12-month follow-up is still ongoing.
dc.format.extent13
dc.format.extent1758255
dc.language.isoeng
dc.relation.ispartofBritish Journal of Oral and Maxillofacial Surgeryen
dc.subjectHead and neck canceren
dc.subjectInterventionen
dc.subjectPrompt listen
dc.subjectHealth-related quality of lifeen
dc.subjectRandomised trialen
dc.subjectPatient concerns inventoryen
dc.subjectCluster preferenceen
dc.subjectRC0254 Neoplasms. Tumors. Oncology (including Cancer)en
dc.subjectRM Therapeutics. Pharmacologyen
dc.subjectE-NDASen
dc.subjectSDG 3 - Good Health and Well-beingen
dc.subject.lccRC0254en
dc.subject.lccRMen
dc.titleImproving quality of life through the routine use of the patient concerns inventory for head and neck cancer patients : baseline results in a cluster preference randomised controlled trialen
dc.typeJournal articleen
dc.contributor.institutionUniversity of St Andrews. Sir James Mackenzie Institute for Early Diagnosisen
dc.contributor.institutionUniversity of St Andrews. Population and Behavioural Science Divisionen
dc.contributor.institutionUniversity of St Andrews. WHO Collaborating Centre for International Child & Adolescent Health Policyen
dc.contributor.institutionUniversity of St Andrews. Health Psychologyen
dc.contributor.institutionUniversity of St Andrews. St Andrews Sustainability Instituteen
dc.contributor.institutionUniversity of St Andrews. School of Medicineen
dc.identifier.doi10.1007/s00405-020-06077-6
dc.description.statusPeer revieweden


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