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Improving quality of life through the routine use of the patient concerns inventory for head and neck cancer patients : baseline results in a cluster preference randomised controlled trial
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dc.contributor.author | Rogers, Simon | |
dc.contributor.author | Allmark, Christine | |
dc.contributor.author | Bekiroglu, Fazilet | |
dc.contributor.author | Tudor Edwards, Rhiannon | |
dc.contributor.author | Fabbroni, Gillon | |
dc.contributor.author | Flavel, Robert | |
dc.contributor.author | Highet, Victoria | |
dc.contributor.author | Ho, Michael W. S. | |
dc.contributor.author | Humphris, Gerald Michael | |
dc.contributor.author | Jones, Terry M. | |
dc.contributor.author | Khattak, Owais | |
dc.contributor.author | Lancaster, Jeffrey | |
dc.contributor.author | Loh, Christopher | |
dc.contributor.author | Lowe, Derek | |
dc.contributor.author | Lowies, Cher | |
dc.contributor.author | Macareavy, Dominic | |
dc.contributor.author | Moor, James | |
dc.contributor.author | Ong, T. K. | |
dc.contributor.author | Prasai, A. | |
dc.contributor.author | Roland, Nicholas | |
dc.contributor.author | Semple, Cherith | |
dc.contributor.author | Haf Spencer, Llinos | |
dc.contributor.author | Tandon, Sank | |
dc.contributor.author | Thomas, Steven J. | |
dc.contributor.author | Schache, Andrew | |
dc.contributor.author | Shaw, Richard J. | |
dc.contributor.author | Kanatas, Anastasios | |
dc.date.accessioned | 2020-07-20T16:30:02Z | |
dc.date.available | 2020-07-20T16:30:02Z | |
dc.date.issued | 2020-06-01 | |
dc.identifier | 267963896 | |
dc.identifier | cbafddef-ade5-4a30-a923-1c99be28cbab | |
dc.identifier | 000537396000004 | |
dc.identifier | 85085873010 | |
dc.identifier.citation | Rogers , S , Allmark , C , Bekiroglu , F , Tudor Edwards , R , Fabbroni , G , Flavel , R , Highet , V , Ho , M W S , Humphris , G M , Jones , T M , Khattak , O , Lancaster , J , Loh , C , Lowe , D , Lowies , C , Macareavy , D , Moor , J , Ong , T K , Prasai , A , Roland , N , Semple , C , Haf Spencer , L , Tandon , S , Thomas , S J , Schache , A , Shaw , R J & Kanatas , A 2020 , ' Improving quality of life through the routine use of the patient concerns inventory for head and neck cancer patients : baseline results in a cluster preference randomised controlled trial ' , British Journal of Oral and Maxillofacial Surgery , vol. First Online . https://doi.org/10.1007/s00405-020-06077-6 | en |
dc.identifier.issn | 0266-4356 | |
dc.identifier.other | ORCID: /0000-0002-4601-8834/work/77893673 | |
dc.identifier.uri | https://hdl.handle.net/10023/20296 | |
dc.description | Funding: RfPB on behalf of the NIHR (PB-PG-0215-36047). This paper presents independent research funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (Grant Reference Number PB-PG-0215-36047). | en |
dc.description.abstract | Purpose The main aim of this paper is to present baseline demographic and clinical characteristics and HRQOL in the two groups of the Patient Concerns Inventory (PCI) trial. The baseline PCI data will also be described. Methods This is a pragmatic cluster preference randomised control trial with 15 consultant clusters from two sites either ‘using' (n = 8) or ‘not using’ (n = 7) the PCI at a clinic for all of their trial patients. The PCI is a 56-item prompt list that helps patients raise concerns that otherwise might be missed. Eligibility was head and neck cancer patients treated with curative intent (all sites, stage of disease, treatments). Results From 511 patients first identified as eligible when screening for the multi-disciplinary tumour board meetings, 288 attended a first routine outpatient baseline study clinic after completion of their treatment, median (IQR) of 103 (71–162) days. At baseline, the two trial groups were similar in demographic and clinical characteristics as well as in HRQOL measures apart from differences in tumour location, tumour staging and mode of treatment. These exceptions were cluster (consultant) related to Maxillofacial and ENT consultants seeing different types of cases. Consultation times were similar, with PCI group times taking about 1 min longer on average (95% CL for the difference between means was from − 0.7 to + 2.2 min). Conclusion Using the PCI in routine post-treatment head and neck cancer clinics do not elongate consultations. Recruitment has finished but 12-month follow-up is still ongoing. | |
dc.format.extent | 13 | |
dc.format.extent | 1758255 | |
dc.language.iso | eng | |
dc.relation.ispartof | British Journal of Oral and Maxillofacial Surgery | en |
dc.subject | Head and neck cancer | en |
dc.subject | Intervention | en |
dc.subject | Prompt list | en |
dc.subject | Health-related quality of life | en |
dc.subject | Randomised trial | en |
dc.subject | Patient concerns inventory | en |
dc.subject | Cluster preference | en |
dc.subject | RC0254 Neoplasms. Tumors. Oncology (including Cancer) | en |
dc.subject | RM Therapeutics. Pharmacology | en |
dc.subject | E-NDAS | en |
dc.subject | SDG 3 - Good Health and Well-being | en |
dc.subject.lcc | RC0254 | en |
dc.subject.lcc | RM | en |
dc.title | Improving quality of life through the routine use of the patient concerns inventory for head and neck cancer patients : baseline results in a cluster preference randomised controlled trial | en |
dc.type | Journal article | en |
dc.contributor.institution | University of St Andrews. Sir James Mackenzie Institute for Early Diagnosis | en |
dc.contributor.institution | University of St Andrews. Population and Behavioural Science Division | en |
dc.contributor.institution | University of St Andrews. WHO Collaborating Centre for International Child & Adolescent Health Policy | en |
dc.contributor.institution | University of St Andrews. Health Psychology | en |
dc.contributor.institution | University of St Andrews. St Andrews Sustainability Institute | en |
dc.contributor.institution | University of St Andrews. School of Medicine | en |
dc.identifier.doi | 10.1007/s00405-020-06077-6 | |
dc.description.status | Peer reviewed | en |
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