Provision of breast cancer risk information to women at the lower end of the familial risk spectrum
Abstract
Background. Breast cancer family clinics provide risk information as one of their key functions. Many referrals to these clinics are 'low-risk' women. Objective: It was the aim of this study to report on the generic risk status letters and printed materials (in the form of leaflets) provided to this category of counselees by UK cancer genetics centres. Methods: A postal survey was conducted requesting information materials from genetic centres. Results: Personalized risk letters and/or printed materials were received from 16 of 22 familial cancer centres in the UK. Personalized risk letters and printed materials currently provided to these counselees display inconsistencies and over-simplification that may lead to misunderstanding. Conclusion: There is a need for collaboration among cancer genetics centres to design more helpful and consistent literature. Copyright (c) 2007 S. Karger AG, Basel.
Citation
Ozakinci , G , Humphris , G & Steel , M 2007 , ' Provision of breast cancer risk information to women at the lower end of the familial risk spectrum ' , Community Genetics , vol. 10 , no. 1 , pp. 41-44 . https://doi.org/10.1159/000096281
Publication
Community Genetics
Status
Peer reviewed
ISSN
1422-2795Type
Journal article
Rights
This is an author version of this work which may vary slightly from the published version. The definitive version © 2007 S. Karger AG, Basel is available from http://dx.doi.org/10.1159/000096281
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