Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research

Willison, Donald; Trowbridge, Joslyn; Sullivan, Francis; Keshavjee, Karim; Greiver, Michelle

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Date

14/09/2018

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Abstract

Diabetes Action Canada is developing a data repository andregistry of potential research participants to support research,QI, and service to improve diabetes care. Central to the repositoryare pseudonymised linkable electronic medical records (EMRs) from family practices that are participating in theCanadian Primary Care Sentinel Surveillance Network (CPCSSN).

Citation

Willison , D , Trowbridge , J , Sullivan , F , Keshavjee , K & Greiver , M 2018 , Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research . in International Journal of Population Data Science . vol. 3 , 594 , Swansea University , International Population Data Linkage Conference (IPDLN 2018) , Banff , Alberta , Canada , 12/09/18 . https://doi.org/10.23889/ijpds.v3i4.594

conference

Publication

International Journal of Population Data Science

DOI

https://doi.org/10.23889/ijpds.v3i4.594

Type

Conference item

Rights

September 2018 © The Authors. Open Access under CC BY-NC-ND 4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en)

Collections

University of St Andrews Research

URI

http://hdl.handle.net/10023/16459