Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research
Abstract
Diabetes Action Canada is developing a data repository andregistry of potential research participants to support research,QI, and service to improve diabetes care. Central to the repositoryare pseudonymised linkable electronic medical records (EMRs) from family practices that are participating in theCanadian Primary Care Sentinel Surveillance Network (CPCSSN).
Citation
Willison , D , Trowbridge , J , Sullivan , F , Keshavjee , K & Greiver , M 2018 , Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research . in International Journal of Population Data Science . vol. 3 , 594 , Swansea University , International Population Data Linkage Conference (IPDLN 2018) , Banff , Canada , 12/09/18 . https://doi.org/10.23889/ijpds.v3i4.594 conference
Publication
International Journal of Population Data Science
Type
Conference item
Rights
September 2018 © The Authors. Open Access under CC BY-NC-ND 4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en)
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