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dc.contributor.authorHubbard, Gill
dc.contributor.authorTaylor, Claire
dc.contributor.authorBeeken, Becca
dc.contributor.authorCampbell, Anna
dc.contributor.authorGracey, Jackie
dc.contributor.authorGrimmett, Chloe
dc.contributor.authorFisher, Abi
dc.contributor.authorOzakinci, Gozde
dc.contributor.authorSlater, Sarah
dc.contributor.authorGorely, Trish
dc.identifier.citationHubbard , G , Taylor , C , Beeken , B , Campbell , A , Gracey , J , Grimmett , C , Fisher , A , Ozakinci , G , Slater , S & Gorely , T 2017 , ' Research priorities about stoma-related quality of life from the perspective of people with a stoma : a pilot survey ' , Health Expectations , vol. 20 , no. 6 , pp. 1421–1427 . ,
dc.identifier.otherPURE: 250016162
dc.identifier.otherPURE UUID: b3bd9087-c487-4bc7-9a67-dc003d6c48fd
dc.identifier.otherWOS: 000415370300025
dc.identifier.otherScopus: 85021782688
dc.identifier.otherWOS: 000415370300025
dc.identifier.otherORCID: /0000-0001-5869-3274/work/34828593
dc.descriptionWe thank the following charities for advertising the study: Ileostomy Association, Colostomy Association, Bowel and Cancer Research, Urostomy Association.en
dc.description.abstractBackground There is a recognized need to include patients in setting research priorities. Research priorities identified by people with a stoma are rarely elicited. Objectives To improve the quality of life of people with a stoma through use of evidence-based practice based on research priorities set by patients.Design and Methods Online pilot survey publicized in 2016 via United Kingdom stoma charities. People ranked nine stoma-related quality of life topics in order of research priority. Participants People 16 years of age and over who currently have or have had a stoma for treatment for any medical condition. Analysis Distributions of the priority scores for each of the nine research topics were examined. Group differences were explored using either the Mann–Whitney U-test or the Kruskal–Wallis test depending on the number of groups. Results In total, 225 people completed the survey. The most important research priority was pouch leak problems and stoma bag/appliance problems followed by hernia risk. There were statistically significant differences in ranking research priorities between males and females, age, underlying disease that led to a stoma, stoma type and length of time with a stoma. Conclusion People with a stoma are willing to engage in and set research priorities. The results should contribute towards future research about setting the research agenda for the study of stoma-related concerns that impact quality of life.
dc.relation.ispartofHealth Expectationsen
dc.rights© 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.en
dc.subjectPublic/patient involvementen
dc.subjectResearch prioritiesen
dc.subjectBF Psychologyen
dc.subjectRA Public aspects of medicineen
dc.subjectRC Internal medicineen
dc.titleResearch priorities about stoma-related quality of life from the perspective of people with a stoma : a pilot surveyen
dc.typeJournal articleen
dc.description.versionPublisher PDFen
dc.contributor.institutionUniversity of St Andrews.School of Medicineen
dc.contributor.institutionUniversity of St Andrews.Health Psychologyen
dc.contributor.institutionUniversity of St Andrews.St Andrews Sustainability Instituteen
dc.contributor.institutionUniversity of St Andrews.Population and Behavioural Science Divisionen
dc.description.statusPeer revieweden

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