Epidemiology data from the Scottish Health and Ethnicity Linkage Study (SHELS)
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We linked the 2001 Scottish Census, which contains ethnicity, socio-economic and demographic data to health and death records, creating an anonymised retrospective cohort study of 4.65 million people to assess the association between ethnicity and health outcomes in Scotland. The databases contain data mostly from hospital discharge and mortality records, but also from other registers. The databases are stored in a safe haven at the National Records of Scotland (NRS). NRS is currently exploring the feasibility of making Scottish Health and Ethnicity Linkage Study (SHELS) data open access while ensuring that the same level of confidentiality is maintained. If SHELS becomes open access it could be reused, with the appropriate approvals, to assess the influence of other socio-economic or demographic measures on the Scottish population?s health.
Fernandez , J , Douglas , A , Cezard , G & Bhopal , R 2014 , ' Epidemiology data from the Scottish Health and Ethnicity Linkage Study (SHELS) ' , Open Health Data , vol. 2 , e8 . https://doi.org/10.5334/ohd.an
Open Health Data
© 2014 The Author(s). This is an open-access article distributed under the terms of the Creative Commons Attribution 3.0 Unported License (CC-BY 3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/3.0/.
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